I found out on
Monday that I am officially ready for eye surgery. Thyroid eye disease can be a nasty little bugger, and often
times, people must wait years until the disease “calms down” enough before they
can have surgery. I am fortunate in that regard because I only developed
moderate TED in July 2011, so 13 months ago, and it “calmed down” in October. I’m
not fortunate to have TED, as many people experience no eye involvement with
Graves disease, but my eyes started changing soon after I was diagnosed. I
always had deep-set eyes that I was somewhat self-conscious of because, from a
profile view, my eyebrows almost “stuck out.” Within a few months of my Graves
diagnosed, my eyes began bulging not to the point that it was noticeable to
anyone but me, but enough that my eyes now lined up with my eyebrows from a
profile view. Unfortunately, a year later, my eyes bulged to the point that I
became unrecognizable to people who hadn’t seen me in a few years. This was
devastating, and extremely painful—both physically and emotionally. Now that
the physical pain is gone and the swelling is under control, my surgeon is
ready to operate.
The official name of
the procedure I’m having is a bilateral (meaning both) orbital decompression.
An ENT surgeon will enter through my nose to remove the medial wall (between my
eyes and nose) on both sides, and part of the orbit floor (the bone under my
eyes). My oculofacial surgeon will create a small incision on the outside of
both eyes to remove the lateral (outer, near my temples) walls. He told me the
scars would fade into my wrinkl…oh yeah, I don’t have wrinkles. Anywho, they
will be tiny little scars that probably only I will notice, and since this
whole TED thing required steroids that caused acne, I rarely leave the house
without makeup anyway so I’m sure the scars will be nearly invisible. The point
of the surgery is to create more room around my eyes so that they can go back
into my head where they belong. Normally, this can be achieved by only removing
fat, but since mine is pretty significant, they need to remove bone. You don’t
need that bone anyway.
Since two surgeons
will be operating on me, so the surgery is almost two months away on Sept. 25. I’m
ready today but I still need to meet the ENT, see my primary care doctor just
to ensure everything else is working properly and my ticker isn’t going to give
out on the operating table.
I have never told my
co-workers or boss about Graves or my eyes. But now I have to. So last week,
when I officially got the surgery date, it was a convenient coincidence that my
boss wanted to know if I was taking any vacation time and if not, why not? It’s
summer and pretty quiet here with no students on campus, so better now than
during the semester. Too bad I don’t get a real vacation now that I have to use
my sick time, personal days, and two weeks of vacation (in that order) for
surgery and the lengthy recovery.
Thank goodness, even
though I went into my boss’s office shaking, she was more curious than anything
else. Concerned, too, and that’s probably because her daughters are only a few
years younger than me. It turns out a former colleague had Graves and TED but
quit shortly after their diagnoses and onset. Strange, because a former
colleague at my previous job had Graves also. That’s three PR people who have
it, and I’m sure many more. They say it’s caused by stress, so no surprises
there. PR is hardcore.
The recovery is
supposed to be pretty intense. Aside from all the risks surgery carries, and
the pain and swelling and the fact that I will look like I got into a brawl, there
is a 50/50 chance that I will develop double vision (strabismus) regardless of
any precautions the surgeons take. It just happens. If I do, and it doesn’t go
away after two weeks like many double vision does, then I will need eye muscle
surgery after about three months. It’s a fairly simple procedure. If I don’t
need that, the next surgery will still be three months later to lower my
eyelids. Since my eyes have been bulging for more than year, the eyelids have
stretched over them. Once my eyes go back to normal, the lids will still be "stuck" up over where the top of my eyeballs would hav been, and I will still look surprised all the time. If I need the eye muscle surgery, the lid surgery will be
three months after that, so we are talking six months worth of surgery and
recovery at minimum, or nine months to a year if I need all three. I planned
for this, and I’m freaking ready.
I took a full week
off, and we are going to play the rest by ear. Maybe I will work the second
week doing half-days or working from home or some sort of part-time
arrangement, and then I will still come back to work on Day 15 bruised and
swollen but probably OK to work and drive, unless I get that double vision.
That’s a bridge I don’t plan to worry about until it comes time to cross, but I
have to make at least tentative plans in case that happens. If it does, I won’t
be able to drive, and will rely on my dad mostly. My boss passes me on her way
in, so we could probably work something out for most days, and my dad gets out
of work before me but doesn’t work too far from here, so it would just be those
days where other people have appointments or meetings and I maybe need to work
from home or something. Again, that’s a bridge I’ll cross when I get there.
Here is the photo my
surgeon is going to use as a reference. He said, “You look adorable here.” I
took that to mean I don’t look adorable now. Nah, he is the most genuine person
I have ever met in the health care field, so what he meant is that although
people say, “Your eyes look fine,” or, “But you have such big, pretty eyes,”
that the changes since TED are significant and severe, and this surgery is
medically necessary (if it wasn’t, insurance wouldn’t cover it). On a somewhat
unrelated note, I agree with the surgeon. I like this photo of me. I used to be
very comfortable in my own skin. I never thought I was hot (too plain) or
gorgeous (too flawed), but I thought I was pretty and like the way I looked.
Because this is “the look” we’re going for, I think it would be helpful if I
cut my hair to be about the same length, and did my best to lose any excess
weight I can before surgery. My thyroid levels are a whole other issue, and I
have little control over my weight and metabolism right now while we are still
sorting everything out, but I have decided to really cut out junk. I’m still
going to eat dairy products and red meat and carbs, but I’m going to try and
eat as little processed food as I can, while still allowing myself to eat
whatever I want for two meals a week, which is probably going to be my Dunkin
Donuts on Friday mornings and a dinner out with friends or family. Otherwise,
I’m eating lean protein, fruits, vegetables, healthy starches, dairy (ice cream
is my weakness), and lots of water, and less coffee. The reason I’m going to
cut my hair is not just because I want to look like this, it’s also because my
hair is really long and there won’t be a female presence in the days after
surgery (more on that later) to help me with it, so the less I have to deal
with, the better.
That was my headshot
at my job on Sanibel Island. It was taken in May 2009, about nine months before
I was diagnosed with Graves but probably only a few weeks before the Graves
started (I began noticing symptoms in July that I attributed to all sorts of
other causes until I was diagnosed and realized all the symptoms were Graves
symptoms). Here is my headshot for my current job, taken in February 2012.
Drastic difference. No, I have not colored my hair. But it was definitely
lighter when I worked on an island every day, and the lighting in the recent
headshot was really odd. And, I was squinting as hard as I could here. I always do in photos now.
So, for an accurate look at my eyes, I leave you with this - a photo comparison of my eyes in May 2009 versus August 2012, a little more than years apart. I'm not squinting in the first photo or trying to open my eyes wide in the second photo, just smiling.